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Special Issue of Fountain House Mental Health Clubhouses as Hybrid Self-Help Organizations 喷泉之家精神健康会所混合自助组织特刊
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.1.A
T. Borkman
This special issue introduces researchers, practitioners, and the public to the self-help and mutual aid aspects of Fountain House mental health Clubhouses. These articles explore beyond the frameworks of the older conventional concepts of psychosocial rehabilitation; instead, they focus on newer emerging concepts of mutual aid, peer support, empowerment, and recovery. Fountain House Clubhouses have been studied and reported in the scholarly literature separate from that of mental health consumer-run (or service-user-run) self-help organizations (CROs) as they have been seen as so disparate that they have little in common. This article proposes a conceptualization of Clubhouses and CROs as mental health organizations that focuses on their mutual aid features—on what they have in common as self-help organizations. The intention is to provide a bridge so that the two literatures can be brought together to enrich each other. But, before we build this bridge (“Conceptually Integrating Clubhouses with other Mental Health CROs” below), we need to Introduce this Special Issue. Fountain House New York, the original Fountain House, is profusely thanked and greatly appreciated for its generous role in the idea for this special issue and for providing support through hosting a symposium and a subsequent meeting for researchers to present and critique their papers on Clubhouses. Fountain House is clearly devoted to independent research as their hosting role came without any strings attached. Kudos and thank yous to the Guest Editor Magnus Karlsson whose coordination of the project brought it to fruition. He encouraged
这期特刊向研究人员、从业人员和公众介绍泉之家心理健康会所的自助互助方面。这些文章超越了传统的社会心理康复概念的框架;相反,他们关注的是互助、同伴支持、赋权和康复等新兴概念。在学术文献中,喷泉屋俱乐部与心理健康消费者经营(或服务用户经营)自助组织(cro)分开进行了研究和报道,因为它们被认为是如此不同,以至于它们几乎没有共同点。这篇文章提出了一个概念,将俱乐部和cro作为精神健康组织,重点放在他们的互助特征上——他们作为自助组织的共同点。其目的是提供一座桥梁,使两种文献可以汇集在一起,相互丰富。但是,在我们建立这座桥梁之前(下文“从概念上整合会所与其他心理健康cro”),我们需要介绍这一期特刊。喷泉之家纽约,最初的喷泉之家,非常感谢它在本期特刊的创意中所扮演的慷慨角色,并通过举办研讨会和随后的会议为研究人员提供支持,以展示和评论他们关于俱乐部的论文。喷泉屋显然致力于独立研究,因为他们的主持角色没有任何附加条件。感谢客座编辑Magnus Karlsson,他的协调使这个项目取得了成果。他鼓励
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引用次数: 5
Book Reviews: Sharing Experience, Living and Learning: A Study of Self-Help Groups , by K. T. Elsdon with John Reynolds and Susan Stewart 书评:《分享经验、生活与学习:自助团体研究》,作者:k·t·埃尔斯登,作者:约翰·雷诺兹,苏珊·斯图尔特
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.2.H
C. Munn-Giddings
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引用次数: 3
The Relationship between Sense of Mattering, Stigma, and Recovery: An Empirical Study of Clubhouse Participants in the U.S. Midwest 重要感、耻辱感与康复的关系:美国中西部俱乐部参与者的实证研究
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.1.D
Deborah L. Conrad-Garrisi, Francesca M. Pernice-Duca
Individuals who experience a sense of mattering are more likely to experience higher levels of psychosocial well-being. Individuals with serious mental illness (SMI) often experience ostracism and social rejection rather than a sense of mattering, partly due to the stigma associated with SMI. Examining sense of mattering as a component of social support is a contribution of this study. Clubhouses provide support and assistance to individuals with SMI. The clubhouse program provides an intentional environment that creates a sense of community and offers an opportunity to develop sense of mattering, build skills, and develop peer relationships, which promotes recovery. A sample of 143 clubhouse members from 10 clubhouses participated in interviews about experiences of being a clubhouse member; perceptions of sense of mattering, stigma, and recovery. Results confirmed a sense of mattering is predictive of a subjective recovery. Individuals that experience a greater sense of mattering experienced less perceived stigma. *This study is part of a Dissertation completed by the first author to fulfill requirements for a Doctorate in Philosophy in Educational Psychology at Wayne State University.
体验到被重视感的个体更有可能体验到更高水平的社会心理健康。患有严重精神疾病(SMI)的人经常会受到排斥和社会排斥,而不是觉得自己很重要,部分原因是与严重精神疾病相关的耻辱。考察作为社会支持组成部分的重要意识是本研究的一个贡献。俱乐部为重度精神障碍患者提供支持和帮助。俱乐部计划提供了一个有意识的环境,创造了一种社区意识,并提供了一个机会来发展重要的意识,建立技能,发展同伴关系,这促进了康复。选取了来自10个俱乐部的143名俱乐部成员参加了关于成为俱乐部成员的经历的访谈;对被重视感、耻辱感和康复的认知。结果证实,重要感预示着主观康复。感觉更重要的个体感受到的污名较少。*本研究是韦恩州立大学教育心理学哲学博士学位的第一作者完成的论文的一部分。
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引用次数: 10
A Study in Accountability of Clubhouses in Japan, UK, and Italy 日本、英国、意大利俱乐部的问责制研究
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.1.F
Rosario Laratta
Many International Clubhouses are dependent on the state financially; this can potentially undermine their accountability to International Clubhouse Standards, and ultimately to members. Dependence on government funding can compromise Clubhouse autonomy and staff can end up elevating financial and regulatory accountability over member accountability. In order to shed light on how dependence on government affects accountability to members, Clubhouse affiliates in Japan, the United Kingdom, and Italy were investigated in a 2-year project funded by the Japan Society for the Promotion of Science. This study found out that reactions to accountability in Clubhouses vary according to the different kinds of staff. In the United Kingdom and Italy, where staff feel aligned with members (sympathetic staff), staff felt more of a conflict with government standards but also felt less of a need to institutionalize accountability to members. In contrast, it was found that in Japan—where staff had a professional orientation and were more concerned with the community or society at large—staff did not feel a conflict with government standards but they also elevated accountability to the community rather than accountability to members. *This research was supported by a grant from the Japan Society for the Promotion of Science.
许多国际俱乐部在财政上依赖于国家;这可能会破坏他们对国际俱乐部标准的责任,并最终破坏对会员的责任。对政府资金的依赖可能会损害俱乐部的自主权,工作人员最终可能会将财务和监管责任提升到对会员的责任之上。为了阐明对政府的依赖如何影响对会员的责任,在日本科学促进会资助的一个为期两年的项目中,对日本、英国和意大利的Clubhouse附属机构进行了调查。本研究发现,不同类型的员工对俱乐部问责制的反应不同。在英国和意大利,工作人员感到与成员一致(同情的工作人员),工作人员更多地感到与政府标准冲突,但也不太需要将对成员的责任制度化。相比之下,在日本,工作人员以专业为导向,更关心社区或社会,工作人员并不觉得与政府标准有冲突,但他们也提高了对社区的问责,而不是对成员的问责。*这项研究得到了日本科学促进会的资助。
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引用次数: 4
Collective Identity Formation in the Mental Health Clubhouse Community 心理健康俱乐部社区的集体认同形成
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.1.C
J. Mandiberg, M. Edwards
Contemporary community-based mental health programs are predominantly individually focused. Those programs provide few opportunities to develop collective identity among service users. Yet several lines of identity research have demonstrated that strong and positive collective identity may buffer the ill effects of stigma and discrimination on individuals from stigmatized populations. This article reviews that research and through it analyzes the Fountain House model mental health clubhouse and the international clubhouse movement. The collective, mutual aid, and social movement activities within and between clubhouses are considered in light of their contribution to collective identity formation. The article concludes with an appeal to go beyond the typical services research that is focused upon incremental improvements to interventions, and to include research on basic social and psychological processes, such as identity, to inform the way mental health services are designed.
当代以社区为基础的心理健康项目主要以个人为重点。这些项目几乎没有为服务使用者提供培养集体认同感的机会。然而,一些身份研究表明,强烈和积极的集体身份可能会缓冲耻辱和歧视对来自耻辱人群的个人的不良影响。本文回顾了这一研究,并通过它分析了喷泉之家模式的心理健康会所和国际会所运动。俱乐部内部和俱乐部之间的集体、互助和社会运动活动是根据它们对集体身份形成的贡献来考虑的。这篇文章的最后呼吁,要超越以逐步改进干预措施为重点的典型服务研究,并包括对基本社会和心理过程(如身份)的研究,以便为设计精神卫生服务的方式提供信息。
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引用次数: 14
Self-Help Groups in Japan: Historical Development and Current Issues 日本的自助团体:历史发展与当前问题
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.2.G
T. Oka
The purpose of this article is to trace the historical development of self-help groups in Japan, and to discuss current issues that Japanese self-help groups face in their relationships with professionals and in civil society. This particular history is divided into five phases: from ancient times to the 1910s, the 1920s to the early 1950s, the late 1950s through the 1970s, the 1980s to the 1990s, and 2000 and beyond. In addition, the political situations and the influence of Western culture on self-help groups are described. Current issues in self-help groups’ relationships with professionals are caused by the professionals’ disregard for communal learning of “experiential knowledge” through self-help groups, and also their confusion concerning the difference between peer-led self-help groups and professional-led support groups. Furthermore, I discuss problems relating to changes in the Japanese legal status of “public benefit corporation” which impacts self-help groups.
本文的目的是追溯日本自助团体的历史发展,并讨论当前日本自助团体在与专业人士和民间社会的关系中所面临的问题。这段特殊的历史分为五个阶段:从古代到20世纪10年代,从20世纪20年代到50年代初,从50年代末到70年代,从80年代到90年代,2000年及以后。此外,还描述了当时的政治形势和西方文化对自助团体的影响。目前,自助团体与专业人士之间的关系出现问题,主要是由于专业人士对通过自助团体共同学习“经验知识”的漠视,以及他们对以同伴为主导的自助团体与以专业人士为主导的支持团体之间的区别感到困惑。此外,我还讨论了日本“公益公司”法律地位的变化对自助团体的影响。
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引用次数: 7
A Second Special Issue of Research on Mental Health Clubhouses 心理健康俱乐部研究第二期特刊
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.2.A
T. Borkman
This second special issue on Fountain House mental health clubhouses completes our offerings on this well established form of collectivity that has many self-help/ mutual aid features. The research in these two issues has shown extensive similarity across Clubhouses in different countries as well as diversity in various welfare and cultural contexts. The similarity is partly due to the 36 international standards and the training of staff and members in these standards that define the model and which provide the opportunity for a specific Clubhouse to be named as such (see www.iccd.org). The diversity stems from the cultural interpretation of standards as well as restraining factors of the welfare context and civil society within specific countries. Magnus Karlsson, Guest Editor of these special issues, invited Thomas Craig, a senior psychiatrist familiar with the Clubhouse research from the UK to review the articles for the special issue, situate the Clubhouse as a social intervention to mitigate the effects of mental illness, and comment on how the research in these articles extends our knowledge on Clubhouses. Thomas Craig’s article titled “Expanding knowledge of peer-based mental health organizations: The experience of Clubhouse” is the lead article in this issue. His article and three others comprise this special issue on Clubhouses. Kimiko Tanaka reports the results of her qualitative look at how peer support is manifested for members through their participation in the work-ordered day in one Clubhouse in New York City. Francesca Pernice-Duca and her colleagues accomplish two aims: first, they show how the recently popularized concept of recovery from mental illness (defined in a consensus statement through a U.S.
这是关于喷泉之家心理健康俱乐部的第二期特刊,这是我们对这种具有许多自助/互助特征的良好集体形式的补充。对这两个问题的研究表明,不同国家的俱乐部会所有着广泛的相似性,而在不同的福利和文化背景下也存在着多样性。这种相似性部分是由于36个国际标准以及对工作人员和成员的培训,这些标准定义了这种模式,并为特定的俱乐部会所提供了这样命名的机会(见www.iccd.org)。这种多样性源于对标准的文化解读以及特定国家的福利背景和公民社会的制约因素。本期特刊的特约编辑Magnus Karlsson邀请了熟悉Clubhouse研究的英国资深精神病学家Thomas Craig来回顾本期特刊的文章,将Clubhouse定位为一种减轻精神疾病影响的社会干预,并评论这些文章中的研究如何扩展了我们对Clubhouse的认识。托马斯·克雷格的文章题为“扩展以同伴为基础的心理健康组织的知识:Clubhouse的经验”是这期的主要文章。他的文章和另外三篇文章组成了本期关于Clubhouses的特刊。Kimiko Tanaka报告了她在纽约一家俱乐部的定性研究结果,她研究了同伴的支持是如何通过会员参与安排好的工作日来体现的。Francesca Pernice-Duca和她的同事完成了两个目标:首先,他们展示了最近流行的精神疾病康复概念(在美国精神疾病研究中心的共识声明中定义)
{"title":"A Second Special Issue of Research on Mental Health Clubhouses","authors":"T. Borkman","doi":"10.2190/SH.7.2.A","DOIUrl":"https://doi.org/10.2190/SH.7.2.A","url":null,"abstract":"This second special issue on Fountain House mental health clubhouses completes our offerings on this well established form of collectivity that has many self-help/ mutual aid features. The research in these two issues has shown extensive similarity across Clubhouses in different countries as well as diversity in various welfare and cultural contexts. The similarity is partly due to the 36 international standards and the training of staff and members in these standards that define the model and which provide the opportunity for a specific Clubhouse to be named as such (see www.iccd.org). The diversity stems from the cultural interpretation of standards as well as restraining factors of the welfare context and civil society within specific countries. Magnus Karlsson, Guest Editor of these special issues, invited Thomas Craig, a senior psychiatrist familiar with the Clubhouse research from the UK to review the articles for the special issue, situate the Clubhouse as a social intervention to mitigate the effects of mental illness, and comment on how the research in these articles extends our knowledge on Clubhouses. Thomas Craig’s article titled “Expanding knowledge of peer-based mental health organizations: The experience of Clubhouse” is the lead article in this issue. His article and three others comprise this special issue on Clubhouses. Kimiko Tanaka reports the results of her qualitative look at how peer support is manifested for members through their participation in the work-ordered day in one Clubhouse in New York City. Francesca Pernice-Duca and her colleagues accomplish two aims: first, they show how the recently popularized concept of recovery from mental illness (defined in a consensus statement through a U.S.","PeriodicalId":64356,"journal":{"name":"自我保健","volume":"68 1","pages":"115-118"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85639785","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Clubhouse Peer Support among Individuals with Psychiatric Illness 精神疾病患者的同侪支持
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.2.C
Kimiko Tanaka
The purpose of the study was to delineate peer support among clubhouse members in the context of the “work-ordered day (WOD),” the core of the clubhouse model for psychiatric recovery. The study drew on qualitative data collected in 2009-2011 via participant observation and in-depth interviews with 45 members and 11 staff of a clubhouse in New York City. A grounded theory approach to data analysis yielded themes including “peer to peer collaboration” during WOD and “circle of personal peer relationships” expanded as secondary to WOD participation. The study also highlighted how side-by-side WOD participation mediates these personal relationships. The clubhouse peer support, while paralleling daily patterns seen in the outside world of work, also embraced ranges of positive self-help group experiences. An underlying notion seemed to be the sense of normalcy, which can be integral to recovery. Future research should compare peer support across clubhouses in different cultures and societies.
本研究的目的是在“工作命令日”(WOD)的背景下,描述俱乐部成员之间的同伴支持,这是俱乐部精神康复模型的核心。该研究利用了2009-2011年通过参与观察和对纽约市一家俱乐部的45名会员和11名工作人员的深度访谈收集的定性数据。基于理论的数据分析方法产生的主题包括世界发展大会期间的“点对点协作”和作为世界发展大会参与的次要内容而扩大的“个人同伴关系圈”。该研究还强调了并肩参与世界发展大会如何调解这些个人关系。俱乐部的同伴支持虽然与外部工作世界的日常模式相似,但也包含了一系列积极的自助团体体验。一个潜在的概念似乎是正常的感觉,这可能是不可或缺的恢复。未来的研究应该比较不同文化和社会的俱乐部之间的同伴支持。
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引用次数: 8
Ethnic Differences in Cultural Models of Breast Cancer Support Groups 乳腺癌支持团体文化模式的种族差异
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.2.F
J. Corvin, J. Coreil, Rebecca Nupp, K. Dyer
Given the well-documented underrepresentation of ethnic participants in mainstream support groups and the disparity in breast cancer survivorship among ethnic minorities, the current proliferation of ethnic-specific cancer support groups is not surprising. This study employed qualitative and quantitative methods, including cultural consensus analysis, to examine core elements of breast cancer support group models among African-American, European American, and Latina women and describe the perceived role of support groups in the recovery experience. Results indicate a core cultural model of breast cancer support groups exists and the fundamental elements of peer support and encouragement, helping others, talking about worries/ fears, staying active/involved, friendship/bonding, and learning from others are broadly shared across ethnically diverse communities. Elements distinctive to ethnic-specific self-help groups were also identified. Findings provide insight into factors motivating attendance and retention in support groups and may guide recommendations for better meeting the social support needs of culturally diverse patients.
考虑到主流支持团体中少数民族参与者的代表性不足以及少数民族乳腺癌存活率的差异,目前针对少数民族的癌症支持团体的激增并不令人惊讶。本研究采用定性和定量方法,包括文化共识分析,来检验非裔美国人、欧洲裔美国人和拉丁裔女性乳腺癌支持团体模式的核心要素,并描述支持团体在康复经验中的感知作用。结果表明,存在一个核心的乳腺癌支持团体文化模式,同伴支持和鼓励、帮助他人、谈论担忧/恐惧、保持活跃/参与、友谊/联系以及向他人学习等基本要素在不同种族的社区中广泛共享。还确定了特定种族自助团体的独特因素。研究结果提供了对支持小组出勤和保留的因素的深入了解,并可能指导建议更好地满足不同文化的患者的社会支持需求。
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引用次数: 5
Global Model and Local Applications: Peer Support in the Clubhouse Model and Its Practices in Sweden and in Japan 全球模式与本地应用:俱乐部模式中的同伴支持及其在瑞典和日本的实践
Pub Date : 2013-01-01 DOI: 10.2190/SH.7.1.E
Y. Matsui, A. Meeuwisse
Clubhouses are supposed to follow the International Clubhouse Standards, but they also need to make adaptations according to national and local contexts. This article compares the implementation of peer support elements in the clubhouse model in two different social contexts: the Swedish and the Japanese welfare systems. Participatory observations and interviews with members and staff at a Swedish and a Japanese clubhouse were conducted in order to explore how the idea of peer support was carried out in everyday life. Peer support seemed to be a core element in both organizations, but it was organized in slightly different ways. The Swedish clubhouse employed an experience-based way of working and involved members in almost all decision-making processes. The Japanese clubhouse employed a manual-based work method and members' involvement in decision making was relatively limited. The different approaches were due to dissimilar organizational structures, regulatory requirements, and societal expectations that were related to two different welfare systems. (Less)
俱乐部会所应该遵循国际俱乐部会所标准,但他们也需要根据国家和地方的情况进行调整。本文比较了俱乐部模式中同伴支持要素在瑞典和日本两种不同社会背景下的实施情况。对瑞典和日本俱乐部的成员和工作人员进行了参与性观察和访谈,以探索同伴支持的概念如何在日常生活中实施。同伴支持似乎是两个组织的核心要素,但其组织方式略有不同。这家瑞典俱乐部采用了一种基于经验的工作方式,让成员参与几乎所有的决策过程。日本会所采用手工工作方式,会员参与决策的程度相对有限。不同的方法是由于与两种不同的福利制度相关的不同的组织结构、监管要求和社会期望。(少)
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引用次数: 6
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